Thursday update in Peds

Today we started off doing the art activities for almost 2 hours then Ellie was tired and wanted to go rest, we got back to the room and they said we had to go to a consult with the eye doctor. So we were off. It turned out to be an almost 2 hour visit, mostly waiting. We got a consult to see the eye doctor because Ellie's right eye doesn't close all the way which makes it suseptable to dryness and damage. They wanted to see what her vision is like and evaluate things to be able to recheck things in the future incase damage starts affecting how Ellie sees. Well she fell asleep waiting, poor thing, then right when we got back she was going to tuck in and take a nap, but not yet...The person to do the swallow study was here for her. We weren't aware this was going to happen today so we weren't prepared. She was very uncooperative during this but she swallowed enough things that the guy could do some evaluation. He recommended we do another study tomorrow when they can take X-rays while she swallows to see how everything is woring in there. So we have been preparing her for that. Pray she cooperates so they can get a good study done and the best evaluation possible.

When Doctor Menezes came by he was very pleased with her progress in walking, activities, responses and swallowing. I asked the doctor that comes along with him what she thought about when Menezes would discharge her. She thought when she can eat full nutrition on her own. So that's our goal. Full nutrition for Ellie and of course everything else strong enough to go home also.

Ellie finally got to sleep for a couple hours. When she woke up we spent a long time in the play room doing art and playing with leggos. Then we got to see visitors and Nate tonight for a little while! That was nice! Ellie asked for chocolate pudding so she got her chocolate fix for the second evening in a row. Off to bed for her and laundry for us at the house. WooHoo!!