Don't let the title get your hopes up. Just using that as the topic I'm going to talk about. Anyway, Menezes was happy to observe Ellie during therapy yesterday to see how well she was doing physically. We expressed concern about Ellie's coughing all day yesterday and then for a while that morning since she woke up. He said from the study and hearing her she hasn't learned to swallow on her left side only yet. Well who knows how to swallow down one side of your throat? No-one...anyway, so he said to stop eating at least until she stops coughing so much. We'll talk to him tomorrow and see what he says about starting food again. She still coughed all day and is only swallowing her own saliva. Her secretions are getting into her wind pipe and making her cough. He said he'd evaluate things on Monday and Tuesday to decide on when to send us home, either to Covenant Rehab or all the way home if we feel comfortable taking the tube feeding machine home. We said we did feel comfortable with that so we'll take either home or to Covenant. He also said they could put a feeding tube right out her stomach with a simple surgery if it would be better to feed her that way. We want to prolong that and try keeping the tube in her nose we thought. The doctor agreed he wanted to also prolong that and not do it.
Tomorrow we are going to ask him if we can take Ellie outside. Get some sun or just out of the building. We do have a bed at Covenant if we need if and we will meet that person on Tuesday. We talked to the social worker on this floor and he talked to us about applying for some waivers through state programs. She may qualify for the brain injury waiver and or the ill and handicapped waiver. So we are looking into that to see if it's something she qualifies for. We have an oncology appointment on Tuesday we will go to then hopefully head toward home Wednesday. That's all for today and we'll be back on here tomorrow!
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