Friday, May 29, 2009
bummer day Thursday
Today started out fine. Played in the rice this morning had a visit from the Hintons, and went to the swallow study. Ryan went back with Ellie to watch the study. He could see the video of them taking X-ray while she swallowed things. They found out that her muscles on the right side aren't responding how they should to make the food go down correctly. Some of the stuff she swallows goes into her wind pipe. Then of course she coughs which brings most of it out but this isn't good. They are optimistic things will get better but it's a waiting game with this along with the eye. We just have to give it time to see if the swallowing skill comes back. We are hoping to get therapy to help her. I know there are Speech Path/Aud. swallowing specialists reading this. Is there therapy for this? I'm sure her doc will set her up with therapy soon, once he see the results. So needless to say we are bummed because this means we may be here a long time or that we will go home either to Covenant inpatient for rehab therapy or to our house with the feeding tube in her nose.
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That is a bummer BUT other things are going so well, so "Keep On The Sunny Side of Life" as the old Carter Family gossip song says.
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