This morning the ENT team came in to do the scope they told us they were going to do. They put a camera down her nose to mainly look at her vocal cords. The doctor said they didn't think the right cord would move but they were encouraged when they think they saw it move when she coughed. This was promising. Doctor doesn't think she is ready for a swallow study so that is postponed until we know she is swallowing well enough to do it. It can be risky if the patient isn't swallowing well enough. There is still lots of swelling in her throat around her vocal cords which makes it hard to swallow. Pray for reduced swelling so she can swallow better and progress to liquids by mouth and maybe soft foods. She was begging for food today but when I asked if she could have something they still said no. If her swallowing and eating don't progress very much she may be sent home with the feeding tube for a while. We obviously don't want this so lets pray for healing of her throat. We can see good healing when she talks because now she is speaking more frequently and saying sentences. She did say she wants to go home, which brought me to tears.
Doctor still wants her to stay in PICU. The ENT thinks she may be in the hospital for another week but we aren't sure when we get to move downstairs. Today Ellie walked down the hall twice. Once about 100 steps. Then later in the evening she walking really far to see the fish momentarily then walked back to her room. She did well with only holding one hand. Her right one even. Then she returned to the chair where she has been sitting for much of the day supporting herself without pillows. This is also good for her lungs to help move the stuff around in there so they don't have to suction it out as much. She doesn't like the suction tube being put down her throat or nose. I don't blame her, who would? Anyway, another peaceful day with some fun visitors! Thanks for everything!! Love you all! Night Night!
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