Well so far we've had an up and down week. It all depends on Ellie's mood. She is seeming more and more like her old self with all the mood changes. Sometimes she's bummed and missing everything and other times she's living in the moment and accepting what's going on and enjoying it the best she can. It's hard to see her cry about missing school, friends and eating. Other times it is neat to see her explain her tube and her surgery to kids who see and ask her what happened.
We were supposed to have a swallow study today but that didn't happen because the GI doctor couldn't guarantee that he could see her tomorrow to put the G-tube in if she needed it. It's a big challenge scheduling the swallow study after pulling the tube from her nose and then having a G-tube ordered and here in time so the doctor can do a quick surgery all just in case her swallowing isn't good enough. It's confusing I know but I'll leave it up to the doctors and therapists to schedule and talk about. We are hoping that her swallowing just keeps getting better and maybe by the time the study is done she won't need a tube! Woo Hoo! Lets pray for that.
Ellie has had wonderful people stay with her this week while daddy and mommy went back to work some. I have been stopping in every morning, noon and evening. Friends and family come to the hospital to spend time with her while she's not in therapy which has allowed Ryan and I to work. We thank all of you for doing this. We also want to thank those who have been bringing us dinner. They have been deliscious!! It's nice to see everyone and be able to spend time with you all.
After talking to Connie I realized Ellie is probably having trouble adjusting to Ryan and I not being with her 24/7 at the hospital like it was in Iowa City. She tends to try to coax me into staying with her instead of leaving. I can see it taking a little time to get used to it then it will be time to move back home and she'll have to get used to a different kind of routine. I guess I can't blame her for having fussy, moody moments when everything changes every couple weeks. On top of dealing with recooperating she has to deal with adjusting to changes in environment and attention. It's a lot for Ellie, mom and dad to deal with.
Tonight we were able to take her out to the softball ice cream social. It was nice to see her playing on the playground like she used to do. She even went down he big twisty slide with help after she got over her fear of the slide. Then she loved it and went down multiple times. Of course all of this with close supervision.
We have stepped up the model magic artistry. Everyone Ellie coaxes into playing it with her has been making small animals and angels now. A huge step up from flat butterflies, flowers and hearts. It's neat to get back to her room and see what new things are made and who the sculpters are that made them. We've got some talented friends out there. Maybe we'll have a model magic contest to see who can come up with the most elaborate sculpture. To say the least Ellie has opened many people's eyes to the wonders of model magic, now other kids are getting to enjoy it because parents and grandparents are buying it for their kids. Wonderfully fun stuff!!
Ellie's neighbor in the hospital is a man who has a 3 year old grandson visit him many days. His name is Caeden. Ellie and Caeden enjoy playing with each other. They color, paint, play model magic and play outside together. I'll have to get pics up sooner or later.
This is all I can think of to report on tonight so I'll catch yall up later! Good night! Oh...I wanted to say congrats to my friend Corinne in Germany for successfully completing her interview and was granted a position to become a judge! YOU ARE AWESOME! Love you all!
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