Friday, August 28, 2009

More pics

Over the weekend we went to see how far along Richard and Carol's house is coming in Parkersburg since we hadn't been there in months. This is Nate playing in the dirt and cement pieces that grandpa Smiley is air chizeling off a rock for the neighbor.

The skid loader scared Nate to tears but he rode it for a little while.
The last week I was in I.C. with Ellie we took Ethan and Ellie to the fountain to play so here are pics of them playing.

One of the days we went to the Museum of Natural History and bought a dinosaur egg to dig into. Here are the bones we were excavating. Turned out to be long neck dinosaur bones.



Here is Ellie playing with Gabe and Mimi working on Gabe's dinosaur egg. One Sunday Ryan was mowing the yard and Nate climbed up on their sand box to watch him over the edge. He litterally stayed there watching the whole time. I was amazed he stayed for so long.
The rocking horse and other riding toy aren't good enough for Nate. He figures out how to ride his large dump truck that isn't really a riding toy. It's hilarous watching him get around the house on this thing.

Sitting like this tends to get Nate dumped out.

Thursday, August 27, 2009

Check out the blog to see the flyer

Hey all, I know many of you don't actually go to the blog to get my updates, you get them in an email. I wanted to let you all know if you want to see the flyer and get some details about the benefit please actually go to the blog site. http://www.wearesmiley.blogspot.com/ It's at the top and you have to scroll down in the window of the flyer to see the rest. Thank you!

First days back at home

Here are pictures of first evening back home and morning of first day of school.

After Ellie took pictures with Ryan and I Nate walked up there and stood by her cause it was his turn aparently.



Ellie wanted to give flowers to the technicians, nurses and doctor that have helped her in radiation this summer so they got roses for them. Ellie also wanted a rose for herself but a different color. So this is Ellie's yellow rose she wanted to take a picture with.
As a part of her last day of treatment the technicians bought Ellie a big cookie. This is a piece Ellie is finishing at home that she wanted me to take a picture of her eating.
We inherited a build a bear from someone who donated it to the Ronald McDonals House who wanted it to go to a good home. They they asked me if Ellie would like it. So we took it because Ellie found one in the window almost identical to this that she loved. So we surprised it with her last night since she's all done! She loves it.
Nate immediately saw Ellie's mask and put it on his face. He just didn't get his eyes in the holes. How he knew what to do with it I don't know but I caught a picture of it.

Tuesday, August 25, 2009

Ellie's last day!


So Sunday night I decided to give Nate a hair cut with the trimmers. Ryan and I had talked about giving him a mohawk for fun for a short time so here are the pictures of Nate and his Mohawk.

Ellie has made it through Monday and Tuesday fine, even though she didn't want to go back this week. We found out tomorrow, Wednesday, is her last treatment!! We are so excited to have this ending and getting back to a normal life. We are going to try to get her to start school this week, Thursday. I had a good conference with her teacher yesterday afternoon then visited with one of the nurses for a long time about her needs. We are all excited to see her starting! After I visited with the nurse I saw Ellie's friend Ahmad and his mom. It was so cute, Ahmad asked immediately where Ellie was. I answered and told him she was so excited to see him again and hoping they could play together once she started.

So that's the good news and be keeping an eye out for the info about the benefit. We almost have a flier completed. Meghan and I, hopefully Ellie, will also be doing a spot on the KWWL Channel 7 news on Sat., Sept 19 I believe at 7:40am live with Danielle Wagner about the benefit. Neat experience Meghan set up and hopefully Ellie is interested also. That's all for now and we'll keep on updating as we go.

Friday, August 21, 2009

30 done, 3 or 4 to go!!

Well the week was very busy and went quickly. Tuesday my mom took the afternoon and all of Wednesday off to come hang out with us. Monday afternoon we went to the Museum of Natural History in Macbride Hall on campus. That was really neat. They have quite the extensive display of animals. There was a HUMONGOUS ground sloth that was quite scarry to Ellie. She didn't want to stick around to look at that or the prehistoric fish. After enjoying the museum we got a dinosaur egg that had bones inside to glue your own dinosaur together afterward after you pretend you are a paleantologist and dig them out. It was quite dusty finding all the bones in the egg but we did it in one day. Now my hand is bruised from the hard wooden chizel I used to dig the bones out while Ellie used a brush to dust it away.

Wednesday we got to watch Ethan and Haley fur a few hours until their dad got off work and that was fun. We went to the pedmall and played on the play ground and in the fountain for a little while. Then had a picnic that turned into an inside picnic due to rain. Ethan was sad to leave because he was having fun. Tuesday night we went to Hu Hot for dinner because Ellie loves the idea of picking her own food and watching the guys "chop it" to cook it in front of her. Then she saw chop sticks which she called "pork chops" and ate her meal with those. Quite impressive, although they were rigged to use the easy way by pinching them.

Thursday Ethan and Haley hung out with us again and after radiation we just hung out at the RMcD House. There are plenty of other children there to keep them busy for the day. After Jesse picked them up Ellie and I went to the movie Ponyo. It was adorable. If anyone is contemplating seeing it I would suggest YES! The artwork is beautiful, the story is prescious and the characters are adorable. I LOVED IT! It's animated but not like many movies these days. It's different but still great! Just looking at the pictures, soft colors and the artists' take on things is really beautiful. Hope you enjoy it as much as we did!

Friday went smoothly at radiation. I had to say goodbye to the RMcD House staff and the radiation staff because I don't think I'll see them again soon. Everyone was amazing to us. Ryan will go with her for the last 3 or 4 days. Now we are confused when our last day is. Doing the math we think the last day is Wednesday but they told us Thursday last week. So Dolly has to look it up to confirm. If they are home Wednesday night then we'll probably send her to school Thursday and Friday so that's exciting. If it's through Thursday we'll give her Friday to rest up and be ready on Monday to start. She is going to Jane Wilson's daycare for afterschool care until Ryan gets off, which doesn't seem to be too long, maybe an hour. Javier and I went to Jane's Daycare when we went to the Lab School. We are excited to have her in both that school and daycare!

Well, we'll see some of you sooner and others later. Thanks for keeping up with us and have a great weekend and next week!! Good luck to all students going back to school and to teachers starting another year teaching. Hope the students treat you well. ;)

Monday, August 17, 2009

Monday of Week 6

Well the weekend went too fast, but it went very well I guess. Ryan worked at his dad's and I did the typical shopping for groceries, laundry, etc. Ellie met another couple 5 year olds at the Ronald McDonald house Sunday night. They enjoyed time together in the play room.

Today we got up and headed straight to radiation since it's at 9:30 now. We were told to see Dr. Bautti today instead of Wednesday so we stuck around to see him. Ellie pulled a fast one on the doctor today. She wanted to hide from him and he did a good job. She hid under the desk in the exam room, put a bag of her stuffed animals infront of her and hid. He walked in, looked around the room for Ellie, looked at the bag and just began talking to me. Part way through our conversation he saw Ellie move under the desk and was so surprised she was under there. He was even more surprised that she actually pulled that on him. He said he usually sees kids hiding but she did a good job he didn't realize she was under there. So Ellie thought that was fun.

He apologized for springing the extra days on us last minute. Kelly the nurse consulted him before she returned my call last week and she could tell I was crying on the phone when she heard my message, so I believe she told him I w as upset, so he apologized for springing that change on us. He said he believes it's safe for her to receive that little extra radiation to make it better chances she won't have a reoccurance. Especially since she is receiving the treatments so well and not having terrible side affects, he thinks it's the best. Before they were focusing on a golf ball size cavity in her brain where the tumor was and now they will focus on a dime size area. We noticed there are large patches of missing hair that has fallen out due to the radiation. One by the scar and another under her long hair.

Over the weekend Ellie picked out some old stuffed animals that she's not attached to anymore to give away to sick kids in PICU. The many new stuffed animals she received from her stay in the hospital are too precious to us still we couldn't part with those. So today after the appointment we made our way up to PICU hoping to see doctors and nurses that cared for Ellie when we were there. We did run into some people we knew but many we didn't. Ellie happily gave away some old stuffed animals to the sick kids. Some young, tiny babies, and some teenagers all the way to age 21. It was a neat experience. Ellie immediately had sympathy for them and was telling them to get better soon. I think she felt rewarded after seeing smiles on kids faces that she said she wants to give more to kids again. It was neat to see Ellie give back, have sympathy and ask what others were sick with. She has grown up a lot through this. She still of course has her "Ellie" moments.

Tomorrow we want to go to the Museum of Natural History in the Pentacrest at the old capital and then maybe take Ethan and Haley to the Children's Museum in Coralville sometime this week also. I'll keep yall updated as we go along this week. Have a good one!

Saturday, August 15, 2009

Benefit--SAVE THE DATE!!



Hey all, I saw a rough draft of Ellie's benefit flyer yesterday and I love it!! The date is...

Saturday, September 26, 2009 at the Oakleaf Country Club in Reinbeck, IA.

It will be an evening of dancing and desserts. There will be a great silent auction also! I'm so excited you guys. I'm touched that my friends are doing this for us and to be able to see everyone at one time to thank you all is exciting and special to me. I know it's going to be an evening of fun. Hope to see you all there. I'll get flyers and brochures out soon.

WOO HOO!! If you can't tell I'm way excited!! ;)